I am a Pompe Warrior he is the happiest little

he is the happiest little boy

This medically complex warrior has numerous diagnoses one of which is Axenfeld-Rieger syndrome

By her side are her Mommy and Daddy

com/Strength-Stand-Fozzys-Fight/dp/1633086259

a bright and energetic rising 6th grader who loves singing

I am a Pompe Warrior he is the happiest littleMcKenzie Barker is a silly, spunky, sweet 8 year old girl who lives in Maine. At 6 weeks old she was diagnosed with a very rare genetic condition called infantile onset Pompe disease (IOPD), a terminal neuromuscular and lysosomal storage disorder. Treatment for IPD consists of a weekly 6 hour infusion that she will need to receive for the rest of her life as well as therapies year round and many doctor appointments. Although this isnt a cure, the